~Crazy For Natalie~

Finding a CURE for Cystic Fibrosis


Day 2

Posted by Jen on September 29, 2012 at 11:55 AM

We are now on Day 2 of our hospital stay. Today is going to be a longer day for Natalie because she is an isolation patient. That means that she is NOT allowed to leave her room!! This is hard for a 5 1/2 year old. Luckily I went through my art closet at home before we left and grabbed a ton of stuff to keep her amused.

Ryan and Natalie came to see the hospital for the first time today. Dad, Grandma and Grandpa Smith brought them to the 21st floor. It was great for Ryan to see her and know what her room looks like. On the otherhand this was VERY difficult. Aubrey does not understand why she can't go in Natalie's room and play and give her hugs!! So we tried to explain it to her but we didnt succeed. It was hard on Ryan too, because he misses his twin!

The kids could walk to Natalie's door frame and I put the yellow coat on them and they gave a quick hug! Afterwards we left because Aubrey was yelling to go in her room.

Grandma and Grandpa stayed with Natalie while Joe and I took Ryan and Aubrey for lunch. After lunch we went to the Lego store for a quick shopping spree. Ryan loves this store, so it was nice to ttake him somewhere he enjoyed since I won't see him the rest of the day. It was a gorgeous day downtown so we walked around for a little while before we went back to sit with Natalie.

After the kiddos left, we played games, colored and watched movies to make the day go by as fast as possible.

We continued the IV meds and we are still trying to find the righr dose of anitbiotics.

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