~Crazy For Natalie~

Finding a CURE for Cystic Fibrosis

Updates

First CF appointment for 2012

Posted by Jen on January 11, 2012 at 12:55 AM

Today was Natalie's first CF appointment since October. She had her PFT and she is at 107%!!!!! So excited to see she improved. She really loves these tests because it pushes her and she is VERY competitve. She is still coughing. (it never went away, even after the surgery.) But we think since she still is producing boogers, that might be part of the reason for her cough. We did a throat culture to see if she tested positive for pseudomonas or if it went away. We also were told we don't have to go back for 3 months. A typical CF patient goes every 3 months to the CF doctors. Natalie has always been every 2months. This is the second time in 5 years we were told this, so needless to say I was thrilled!!!! She is continuing to put weight on and grow in height. Her BMI is 67% so she is doing great!!! Now we just need to find a way to stop this random, annoying dry cough!!

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