~Crazy For Natalie~

Finding a CURE for Cystic Fibrosis

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Hospital Time

Posted by Jen on September 5, 2013 at 4:25 PM

Well today was the day we knew was coming. I really thought Natalie was in the clear and going to dodge the hospital for a little longer but that is not the case. Her cough has gotten worse so we need to get her back on the road to being cough free. Natalie had her PICC line put in WITHOUTany sedation, they just numbed it for a second and she was good to go. I have to say that is pretty amazing, but she has been doing this awhile now so it is easy for her. Plus Amanda, our child life specialist, is with her and Natalie loves her so that makes it nice for a mom to know that someone special is watching over her as they do the procedure.

We didnt get a room with a view this time :( They were all full. Natalie and I will have to make the most of this stay by entertaining each other.

She had a chest xray taken and also had a PFT. Her PFT was 119% that is amazing considering she is coughing.

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