~Crazy For Natalie~
Finding a CURE for Cystic Fibrosis

Updates

Day 6

Posted by Jen on October 3, 2012 at 6:55 PM

This morning Natalie woke up around 7:30 which is late when you stay in the hospital. Normally people are walk in and out of your room starting at 6:30. Don’t get me wrong, we had a team in here that early, she was just so tired she slept through all the commotion.

At rounds today we talked about Natalie’s release and they are trying for tomorrow. We just need one more blood draw at 4:30 and if that goes well we will be home soon!!! It looks like the pseudomonas was in the mucus plugs, but we have to wait for the lab to final which will take 7 days. The IV meds she is on will treat that too so we don’t have to adjust her medications.

We also talked about Natalie trying the hypertonic saline again when she is back to her baseline. We did this last year but her PFT levels dropped so didn’t continue treatment.

Overall Natalie is doing well and we will continue to fight this disease and not let it win.

At 4:30 our nurse walked in to draw Natalie’s blood work for the last check of her IV dose. And shortly after, she came back and told me the pharmacist was happy with the levels!!! So we can go home tomorrow as long as nothing changes by rounds tomorrow morning!! YIPPEE!!

Grandma and Grandpa Smith sent Natalie a My Little Pony gift with her dad since they are at home with Ryan and Aubrey. Natalie also received a get well gift from Flying High!!! It was so thoughtful of them to think of her!!

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