~Crazy For Natalie~

Finding a CURE for Cystic Fibrosis

Updates

Day 4

Posted by Jen on October 2, 2012 at 1:00 AM

Today is the day before surgery so we are getting all the tests done for the procedure.

Auntie Jill came for a nice morning visit. We built one of the puzzles she brought her and then it was time to go for a PFT. She was lucky enough to go with Natalie for her PFT. I think Natalie had a lot of energy and was so excited to be out of her room for the first time since Friday. So she was goofy and rushed through her PFT and only got a 106%. Don't get me wrong, that is still a good number, but it should be higher because that is very low for her.

After her PFT she went to the exercise room to burn some extra energy!

Auntie Jill stayed and had lunch with us and then we went for a CT scan for tomorrow's sinus surgery.

I looked at the scan with a CF doctor and we saw that her sinuses were blocked again. She had this surgery less than 10 months ago, so it is hard to believe they are blocked again!!! Her polyps are smaller now since she has been on many doses of steroids lately but it will be nice to have all of this out of her nose!!

After I spoke with the doctor our good friend Steph Rodriguez came for a visit! She brought Natalie a new puppy stuffed animal and a bunch of cards from the students at St. Lucy's! Natalie loved these cards, because she knew they were from the kids that had the dance last year for her!!! Thank You St. Lucy!!!!

Natalie had a great visit with Steph. When Natalie got stir crazy again I gave her a gift bag from her Aunt Ceil and family in Texas. They gave her halloween treats and she played with them all over her room. Our great neighbors Arnie and Linda gave Natalie a horse jumping kit for all of her toys.

And then at the end of the day I gave her a bag from her teacher, Mrs. Szymkiewiscz. It had a card made from everyone in her class, a banner that said Get Well Soon signed by everyone and a stuffed bear to be her "twin" while her and Ryan were apart!!! Ryan got the same bear!!! How thoughtful and what a great idea!!! Aubrey got a kitty too. We are luck to have such a caring teacher!

 

 

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