~Crazy For Natalie~
Finding a CURE for Cystic Fibrosis

     Welcome to "Crazy for Natalie"

~ The date for WINTER WONDER BASH 2017 is set; save the date for January 28,2017!

Come and celebrate our 10th year!!! 

For more information on the event please click the Winter Wonder Bash link at the top of the page.

 


 Natalie was asked to be a part of Lurie's new campaign... All for your one! Her photo is being used as a street sign in front of the hospital!

 

 ~Natalie's pictures from her Heroes magazine shoot are on display at the new Lurie's Children's hospital on the windows located in the front of the hospital!!

 

   

 

 

~Natalie was featured in Children's Heroes Magazine for Spring 2012. She was 1 of 4 kids to give a tour of the new hospital. Click the link below to see the magazine.

https://www.childrensmemorial.org/friends/foundation/heroes-magazine.aspx 

 

 

~ Check out our 2 videos by clicking the video link at the top of the page. These will show you what life is like with CF!

 

 

~Please click this link to read about Natalie as one of Children Memorial's Heroes

http://www.childrensmemorial.org/updates/2012/March.html?utm_campaign=Heroes_Update&utm_source=2012_03&utm_medium=Email

 

 

 

 

 

Our Story 

 

On December 6, 2006 twins, Ryan & Natalie Martinez were born. My husband Joe and I were thrilled to go from a family of 2 to a family of 4! A few days after they were born, we noticed that Natalie wasn't gaining weight and maintaining it like her brother Ryan. They were born in Germany, so it was difficult to talk about the issue since Joe and I didn't speak German. Finally after 4 weeks, the doctor told us he wanted to meet with us. He told us that they suspect Natalie has Cystic Fibrosis but couldn't prove it without genetic bloodwork. She was so tiny that she couldn't sweat enough to show she had CF through a sweat test. That is the common way to find out if someone has CF once they get a little bigger. After hearing this devastating news we talked, regrouped and decided that we were going to do everything in our power to make sure Natalie lived a long, healthy life. At the end of January her tests came back showing she did have CF. The most common type homozygous Delta F-508.

 

 The Army moved us back home to Chicago, so we could start to see a Cystic Fibrosis team at a CF care center at Children's Memorial. We started proper treatment for Natalie. Her main issue with this disease has been weight gain, so we decided to have Natalie get a g-tube to assisst her with all the extra calories she needs. Her lungs have remained healthy and her PFT is over 110% We have had four hospital stays regarding a cough.

    Crazy For Natalie Information

Crazy for Natalie started in April of 2007, shortly after Natalie Martinez was diagnosed with Cystic Fibrosis. The thought behind the team name was to have something fun, and have it represent how much Natalie means to all of her friends and family.

We participated in our first CF Great Strides Walk in May of 2007 and raised $12,700!

The next year we raised our goal to $30,000 for our Great Strides Walk. And by hosting our first annual event, Bowl for a Cure. We reached that goal by raising $31,000. The following year we continued our success with all of our events and raised a little over $30,000.

In 2010 we changed our annual event to a Social held at St. Laurence High School. The event was a huge success, raising more money than our bowling event. But we missed our goal by a little and raised $28,000.

For 2011 we had our 2nd annual Winter Wonder Bash at St. Laurence and had our most successful event raising over $22,000. After our 2 other fundraisers, the Great Strides Walk and our annual coin collection, We ended the year raising over $32,000!

In 2012 we decided to sell cash raffle tickets for our Winter Wonder Bash. We sold these before the event, and announced the winner at the bash. Our annual Winter Wonder Bash was held at St. Laurence High School. We had a record breaking 335 people attend the event. Between the raffle tickets and the night of the event we raised over $34,000!! We finished our fundraising year with many other successful fundraisers and brought in a grand total of $47,300 for the CFF.

So since 2007 we have raised over $181,000 to find a CURE for this disease. It wouldn't have been posible without our phenomenal friends and family that have supported us every step of the way. We love that you are "CRAZY FOR NATALIE"!!!!!

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If you have any questions please email us at crazyfornatalie@gmail.com